2007 Initiatives |
This year, Liam's Foundation is actively working to:
- Assist in the development of a statewide needs assessment for Pediatric Palliative Care in Pennsylvania.
- To participate on a statewide Pediatric Palliative Care Task Force in partnership with the Department of Public Welfare and other stakeholders such as tertiary care facilities, home care agencies and Early Intervention.
After meeting with Senator Connie Williams in November, 2006 to discuss the fundamental need and value of a Pediatric Palliative Care Needs Assessment, we were introduced to Dr. Estelle Richmond, Secretary of the Department of Public Welfare. This meeting concluded with the discussion of the development of a Statewide Pediatric Palliative Care Task Force involving all aspects of the pediatric healthcare continuum.
Liam's Foundation has also developed a professional relationship with the Hospice of Lancaster County in Lancaster, Pennsylvania. After meeting several times while working towards our goal of more comprehensive end of life care for children, we had several collaborative meetings which also included the Pennsylvania Hospice Network.
Liam's Foundation will continue to meet and collaborate with the key people of the state of Pennsylvania and it's most dedicated healthcare providers to achieve the most resourceful, effective and compassionate end of life care available for our most fragile children.
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July 30, 2007 |
Meeting with Liam's Foundation/Hospice of Lancaster County/Pennsylvania Hospice Network/David Cassarett, MD MA. To discuss specifically the scope of the needs assessment. David was introduced to us through Joan Harold, Medical Director of HLC. David works for the VA Center for Health Equity, Research and Promotion, University of Pennsylvania. |
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July 10, 2007 |
Meeting with Bayada regarding the creation of an advisory committee for TelePal. |
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June 25, 2007 |
Bayada presentation to Hospice of Lancaster County and Liam's Foundation for physician presentation of TelePal. |
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June 14-15, 2007 |
Annette and Katey also had the privilege of participating as members on the planning committee for a very unique conference. The Children's Hospitals and Clinics of Minneapolis held it's first Pediatric Palliative Care Forum. 100 invitation-only participants gathered and collaborated together. Among them were the Who's Who of the pediatric palliative care experts in the country as well as several parents who have been active in the pediatric palliative care movement for several years.
Liam's Foundation was not only represented at this event by Annette and Katey, but also co-sponsored the event specifically enabling many of the families to attend without financial hardship.
A final report of the Pediatric palliative Care Forum is currently being developed and will be displayed on our website as soon as it is released. |
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April 17, 2007 |
Presentation to the Women's Giving Circle in Lancaster, Pa. entitled “Hidden in Plain View; The Children and Families Behind Closed Doors.” |
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January 26, 2007 |
Meet with Dr. Estelle Richmond, Secretary of the Department of Public Welfare to discuss the state of pediatric palliative care, a statewide needs assessment, and a statewide pediatric palliative care task force. |
| January 17, 2007 |
Bayada/Liam's Foundation/Hospice of Lancaster County/Pennsylvania Hospice Network – meet to promote TelePal program and begin collaborative relationship. |
Upcoming Events |
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October 11, 2007 |
Meeting with Bayada and Liam's Foundation to redefine the goals and objectives of the TelePal Program. |
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October 4, 2007 |
We have been invited back for a second time to lecture at the University of Pennsylvania graduate nursing class about the issues and concerns particularly as they affect the continuity of care for the home-based pediatric patient. Pediatric palliative care is a relatively 'new' field, indeed a new specialty for physicians, nurses and allied paraprofessionals. |
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October 2, 2007 |
Liam's Angel Birthday |
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Sept. 28, 2007 |
Liam's Foundation Fourth Annual Golf Outing to be held at Broad Run Golfer's Club in West Chester, Pa. |
| Sept. 27, 2007 |
Annette and Katey have been invited back as honored guests to the Women's Giving Circle 2007 Funding Proposal Presentation Meeting at the Hospice of Lancaster County. |
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December 11-12, 2006 |
Annette and Bob attend the ATA Telehealth conference in Washington D.C. regarding upcoming telehealth bills and laws in process. |
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LLF Third Annual Golf Outing held at Tattersall Golf Club in
West Chester, PA |
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Annette and Katey attended the American Telemedicine Association (ATA) annual technology conference held in Orlando, FLA |
April 17, 2006 |
Annette and Katey are invited and present in front of the Women's Giving Circle at the Hospice of Lancaster County. The presentation is titled "Hidden in Plain View; The Children and Families Behind Closed Doors." |
February, 2006 |
Annette and Katey are invited to participate in an orientation program for new staff nurses at Exceptional Care for Children in Newark, DE. The facility will officially open February 2006. |
| Annette and Katey meet with representatives from Pennsylvania's State Department of Welfare to discuss the future allocation of funds to support a pilot telemedicine program for pediatric patients. |
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Annette and Katey along other LLF board members meet with Bayada Home Care to discuss a future partnership in telemedicine for their pediatric population. |
In the News |
July 13, 2004 |
Comforting Liam - The Daily Local News |
November, 2004 |
Confronting a New and Evolving Reality:
Parents and Family Roles in Decision Making - Presented by Annette O'Brien at the first National Pediatric Palliative Care Conference in Michigan, Nov. 2004 |
Recent Publications |
Spring, 2004 |
A Grandmother's Grief and Lingering Questions: A Visual Case Study Annette O'Brien, R.N. - American Academy of Hospice and Palliative Medicine |
Fall, 2004 |
Liam's story is published on the web site of the National Alliance for Children with Life Threatening Conditions - NACWLTC |
